Wednesday, October 27, 2010

How do you do it?

I have had several people ask me "how do you do it?" And now they have started asking Mike. So, I thought I'd try to explain it here.

I have Lupus, osteo arthritis, rheumatoid arthritis and several other health issues. Lupus and the arthritis are the ones that affect (or bother) me the most. I have pain and fatigue nearly everyday. But, I don't want to just sit back and wait to die. Who would? I exercise in the pool at the YMCA 3 times a week. The water helps a lot to keep moving and sorta flexible.

The main thing is God keeps me going. He encourages me and comforts me. He has also given me common sense and some pretty good doctors. The doctors then give me the medicines I need to cope with my diseases. Remember, there is no cure for Lupus.

I am in a study for a new medicine for the Lupus that really helps. I get it every four weeks. The med only works for 3 weeks. The week in between? Well, let's just say I try to not do anything. I sleep a lot those days and take a lot of pain meds. We are hoping the study med will be approved by the FDA soon and that I will be able to get it thru Medicare or the manufacturer. And to get the infusion every 3 weeks instead of 4.

Remember, God gave me common sense too. I know when I am "DONE" for the day. Mike knows if I tell him I am done, then that is all I can do. I might as well have a seat or go to bed. The common sense comes in to know when you are reaching your limits and either slow down or stop. What good will you be to the rest of your family or yourself if you over do it? I know what I need help with as well. So, I am no longer afraid or embarrassed to ask for help.

How do I do it? I have a loving God, a wonderful and supportive husband, good doctors, good meds and common sense.

Hope this has helped.

1 comment:

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